April 25, 2013
Billy, Craniosynostosis, hospital, John Radcliffe, Kidney
We had a week of visiting hospitals last week as Billy had his four month post-op check for his head at John Radcliffe in Oxford and a check on his kidney in Southampton.
Good news in both cases the craniofacial team at the JR are really pleased with him, his head is now within normal parameters and we don’t have to go back for two years! Think I may have done a bit of a goldfish impression when they said that but past cases suggest that as Billy has no problems now they won’t develop in the next couple of years (skull wise anyway!) so in the words of his consultant ‘there’s no point us coming in just to say hello’ we can still call if we have any concerns obviously.
Southampton General also pleased with Billy’s kidney. The ultra sound showed that the kidney that had the blockage is still a bit larger than his ‘normal’ one but that was expected and its no longer messily dilated and causing problems, so back in a year the check on progress there.
That means a whole year without a hospital appointment (hopefully!) It’s taken a while to sink in but now it has it feels great!
March 7, 2013
Billy, Craniosynostosis, world book day
Billy in his Tigger suit for World Book Day
February 14, 2013
Billy, Craniosynostosis, Nursery, Valentines
Billy made us a lovely Valentine’s card at nursery today – lucky mummy and daddy
January 21, 2013
Billy, Craniosynostosis, Snow
Billy having fun in his first proper snow and wearing a hat that fits properly now his head is the right shape for them!
December 27, 2012
Billy, Christmas, Craniosynostosis
Billy playing with one of Christmas presents and having a great time. So good to have him healthy and recovered from his operation – best Christmas present ever. Hope you all had a good one.
December 10, 2012
Billy, Craniosynostosis, food
Actually mummy I can eat my yoghurt on my own!
November 30, 2012
Billy, Craniosynostosis, John Radcliffe
Firstly apologies for the lack of update other things took over for a while there!
Billy is home and has been since the Monday after his operation so we were only in Hospital for five days!
He is doing amazingly well and if he didn’t have a large zig-zag scar running across his head from ear to ear you would never know he had had surgery so recently.
Being Billy he’s also learnt to walk this week! The photo was taken yesterday. So of course I’m spending half my day telling him to ‘be careful’ or ‘watch your head’. Think I must be working on a we grey hairs!