9 months today!

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Billy is nine months old today. Seems both very fast and slow at the same time.
At nine months he can
Sit unaided
Walk holding on to someone’s hands
Stand holding on to something or holding a hand
Move himself around in circles on the floor
Pull himself up to standing using furniture/a handhold

Is babbling more and more and has the start of his first tooth.
Not bad in the space of nine months!



Billy has a tooth!

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Our little boy is growing up! Today at 3 days off 9 months Billy has cut his first tooth. It’s just poking through his gum, front bottom left. Now it’s out hopefully it won’t be long before its tooth sized and joined by others 🙂

Things Billy took for an (assisted) walk around the house yesterday

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The bag from a nappy pack
Bottle of baby moisturiser
Toy Donkey
A pen
A Pingu DVD
Some paper
A sock
Toy snowman
A fridge magnet
A (clean) pair of pants
A hairbrush

He was a busy baby!

Why are you crying?

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One of the tricky things about parenting a Cranio baby is the paranoia you experience every time they cry randomly. For a split second (or longer) every time you wonder if it’s because they have a headache or if there’s a more normal baby reason – like teething!

So far for us it’s always been the more normal reason thankfully, but it’s hard especially as Billy is our first so we have no comparison for his development.

Sometimes you wonder for a moment what it would be like not to have to worry about the Cranio and be able to parent ‘like normal’ but that soon passes and you carry on with your day.

So far the Cranio doesn’t seem to be causing any health problems for Billy, he is desperate to be able walk, is starting to babble more and is a bright, happy boy.

As he gets older his typical Sagittal Synostosis head shape does grow more pronounced, some of his clothes now have cuts round the neck to enable them to stretch over his head and finding a hat that fits him is nigh on impossible, but for the moment the doctors are confident his brain has all the space it needs so we shall wait and see what the next hospital appointment brings.

Introducing Billy

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Hello 🙂 as the title of the blog says this is a blog for Billy. Billy is our 8 month old son and I’ve decided to start a blog about our experiences. Billy was born with a fairly rare condition called Craniosynostosis where one or more of the sutures in the skull fuse earlier than they should in his case before he was born (in Billy’s case its the sagittal suture) We were very lucky in a way as this was discovered on a growth scan before he was born, which is unusual in the diagnosis of this condition usually it not discovered for many months after birth.

He is under the care of the Cranio-facial team at John Radcliffe hospital in Oxford where he is due a major operation at some point when he is between 12-15 months.

In an unfortunate coincidence Billy was also born with a dilated kidney on his left side, he has had an operation to correct this when he was 4 months old and we are still waiting for the all clear on this, having follow up tests on his kidney function.

This blog is to chart our journey (and some of the everyday stuff too)

C (Billy’s mum)